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Patients and Caregivers

As a patient or caregiver with lived experiences of interacting with the healthcare system, your voice and healthcare journey matters. Your experiences and input are imperative in helping researchers prioritize their work and ensuring that projects are tailored to understand and improve the delivery of specific needs of patients and caregivers.


If you are a current or former ALC patient or caregiver, we are here to help you and support you. Please feel free to use the material and links included here. They are available to help you navigate the healthcare system and to provide ways to improve on your care:

Ontario Caregiver Organization and Health Experiences Canada

Should you like to be more involved and participate in alleviating the difficulties of ALC, please get in touch as we are actively recruiting new members, and visit Our Contributions page for an overview of the impact patients’ and caregivers’ voices are having on improving the care of ALC patients.

If you are looking to form your own patient and/or caregiver advisory council, please get in touch. We can share tips and tools to help you get started.

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We need you

We are looking for partners to help us pilot our patient-centered solutions to addressing ALC.

To receive more information and to collaborate with us please contact us.

Image by Priscilla Du Preez
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